How to Share SCI Support and Advocacy

Once you choose hope, anything’s possible.” – Christopher Reeve

I recently watched the original 1979 Superman movie with my kids – the one with Christopher Reeve, Margot Kidder, and Gene Hackman. Such a classic.

My 10-year-old daughter started asking questions about Christopher Reeve, the accident that left him paralyzed, and when he died. Christopher Reeve was 44 years old when he was paralyzed in a horse riding accident, he died 9 years later.

Looking this up clarified a point that arose when Vicki Atkinson and I recorded this week’s How to Share podcast conversation with the amazing activist and author, Micki Purcell. Micki’s son, Anthony, was paralyzed in a diving accident 15 years ago. Micki spent seven years by Anthony’s side navigating the difficult hurdles of rehab and recovery.

Along the way, Micki and Anthony started the Walking with Anthony foundation. It is the go-to foundation for helping individuals and families navigate the physical, mental and financial challenges that come with this life-changing injury.

Here’s where Superman meets Super Mom. The Christopher Reeve foundation focuses primarily on research related to spinal cord injuries. In contrast, Walking with Anthony mentors individuals and families through the process of recovery: connecting them to rehab, personally spending time with them, and by providing grants for caregiving, rehab and special equipment.

In our podcast conversation, Micki tells us how Anthony is doing now and we get to heartwarming stories about how all of their large family is involved with Walking with Anthony. Micki’s hands-on advocacy will grip and delight you!

Micki shares some details about their Stand up for a Cause event in Newport Beach on October 24th. The event will honor courageous medical staff doing incredible Spinal Cord Injury work and a Tony award winning actress, Ali Stoker. Micki’s goal is to raise $1 million to fund grants for people with spinal cord injuries.

September is spinal cord injury awareness month and 2025 marks the 35th anniversary of the American with Disabilities Act. Vicki and I are so grateful to be able to bring you this episode to honor both.

This is a powerful episode that will inspire and touch you. We know you’ll love it.

Takeaways

  • Micki Purcell founded Walking with Anthony to help families affected by spinal cord injuries.
  • Insurance often fails to cover necessary rehabilitation for spinal cord injury patients.
  • The organization has become a vital resource for those in need of support and guidance.
  • Recovery from spinal cord injuries requires a strong desire and commitment to progress.
  • Micki’s advocacy work is deeply personal and driven by her family’s experiences.
  • Community support plays a crucial role in the recovery process for individuals with disabilities.
  • Micki emphasizes the importance of mental health and emotional support for patients and families.
  • The upcoming event aims to raise funds to help more individuals receive necessary care.
  • Micki’s family is actively involved in the charity, showcasing the power of collective support.
  • There is a pressing need for systemic change in healthcare coverage for spinal cord injuries.

Here’s a clip of Micki describing how insurance falls short for individuals with a spinal cord injury.

Here are some ways you can listen and watch this incredibly inspiring episode:

Please listen, watch, provide feedback and subscribe.

How to Share SCI Support and Advocacy transcript

How to Share Our Luck with Gil Gillenwater How To Share

In this enlightening conversation, Gil Gillenwater is with host Wynne Leon and shares his experiences and insights from over 35 years of philanthropic work along the US-Mexico border. He discusses his book, 'Hope on the Border,' which highlights the transformative power of education and community service. Gil emphasizes the importance of enlightened self-interest over traditional charity, advocating for a model that empowers individuals and fosters dignity. He explores the duality of poverty, the need for sustainable opportunities, and the joy found in serving others, ultimately presenting a vision for a more connected and compassionate world.TakeawaysEducation is the key to breaking the cycle of poverty.Enlightened self-interest can lead to personal and communal growth.Charity should not be viewed as a sacrifice but as a mutual benefit.Volunteering provides a sense of purpose and fulfillment.Welfare can disempower individuals and communities.Community service fosters connections and shared humanity.The disparity in wealth is a significant issue that needs addressing.Experiencing poverty firsthand can change perspectives.Creating opportunities in one's home country can reduce migration.The joy of service is a pathway to personal happiness.Links for this episode:How to Share homeHope on the Border at AmazonGil's organization: Rancho FelizGil Gillenwater on FacebookWynne’s book about her beloved father: Finding My Father’s Faith; Blog: https://wynneleon.com/; Substack: https://wynneleon930758.substack.com/
  1. How to Share Our Luck with Gil Gillenwater
  2. How to Share 1970's Chicago with Doug. E. Jones
  3. How to Share Feedback with Dr. Vicki Atkinson
  4. How to Share the Next Generation with Mari Sarkisian Wyatt
  5. How to Share Impactfully with Social Media Friends with Amy Weinland Daughters

Links for this episode:

⁠Walking with Anthony⁠ Foundation

Micki’s Book: Walking with Anthony on Barnes & Noble and Amazon

From the hosts:

Vicki’s book about resilience and love: ⁠Surviving Sue⁠; Blog: ⁠https://victoriaponders.com/⁠

My book about my beloved father: ⁠Finding My Father’s Faith⁠;

How to Share Advocacy

A very small degree of hope is sufficient to cause the birth of love.” – Stendhal

There are two guys I regularly see at Starbucks. I’m guessing they are in their late 60’s. One gestures animatedly and with disgust at the paper and his friend patiently listens.

Once I heard the patient one suggest to the animated one that he get involved.

The animated one replied, “But the system is broken!

I hope next time that I see them that I have a copy of Sam Daley-Harris’ book Reclaiming Our Democracy: Every Citizen’s Guide to Transformational Advocacy with me. Sam gives us a great formula for overcoming cynicism and hopelessness and suggestions for how to get started.

Vicki Atkinson and I were recently lucky enough to be able to talk with activist and author Sam Daley-Harris on the How to Share podcast. In this episode, we discuss his journey in advocacy, the importance of facing hopelessness, and the power of transformational advocacy.

We also explore the difference between transactional and transformational approaches, the impact of cynicism on political engagement, and the necessity of community support in advocacy efforts.

Sam shares personal stories and insights on how individuals can reclaim their power and make a difference in their communities and the world.

Takeaways

  • Advocacy requires facing our own hopelessness to find purpose.
  • Transformational advocacy involves deeper engagement than transactional actions.
  • Cynicism can lead to inaction; we must choose to engage.
  • Community support is crucial for effective advocacy.
  • Building relationships with legislators can lead to meaningful change.
  • The state of democracy is influenced by citizen engagement and activism.
  • Progress and positive changes are not often featured in today’s news reporting.
  • We need to encourage optimism and action in our communities.
  • Commitment to advocacy can lead to personal transformation.
  • Every individual has the power to make a difference.

Here’s a preview of Sam’s powerful story-telling and encouragement to get involved:

Here are some ways you can listen and watch this incredible episode:

Please listen, watch, provide feedback and subscribe.

How to Share Our Luck with Gil Gillenwater How To Share

In this enlightening conversation, Gil Gillenwater is with host Wynne Leon and shares his experiences and insights from over 35 years of philanthropic work along the US-Mexico border. He discusses his book, 'Hope on the Border,' which highlights the transformative power of education and community service. Gil emphasizes the importance of enlightened self-interest over traditional charity, advocating for a model that empowers individuals and fosters dignity. He explores the duality of poverty, the need for sustainable opportunities, and the joy found in serving others, ultimately presenting a vision for a more connected and compassionate world.TakeawaysEducation is the key to breaking the cycle of poverty.Enlightened self-interest can lead to personal and communal growth.Charity should not be viewed as a sacrifice but as a mutual benefit.Volunteering provides a sense of purpose and fulfillment.Welfare can disempower individuals and communities.Community service fosters connections and shared humanity.The disparity in wealth is a significant issue that needs addressing.Experiencing poverty firsthand can change perspectives.Creating opportunities in one's home country can reduce migration.The joy of service is a pathway to personal happiness.Links for this episode:How to Share homeHope on the Border at AmazonGil's organization: Rancho FelizGil Gillenwater on FacebookWynne’s book about her beloved father: Finding My Father’s Faith; Blog: https://wynneleon.com/; Substack: https://wynneleon930758.substack.com/
  1. How to Share Our Luck with Gil Gillenwater
  2. How to Share 1970's Chicago with Doug. E. Jones
  3. How to Share Feedback with Dr. Vicki Atkinson
  4. How to Share the Next Generation with Mari Sarkisian Wyatt
  5. How to Share Impactfully with Social Media Friends with Amy Weinland Daughters

Links for this episode:

Sam’s Sign-up Sheet for resources on how to get started

Reclaiming Our Democracy website

Reclaiming Our Democracy: Every Citizen’s Guide to Transformational Advocacy, 2024 Edition on Amazon

(featured photo from Pexels)

Lit From Within

If you light a lamp for somebody, it will also brighten your path.” – Buddha

I think the people in life who I’ve learned some of the most memorable lessons from are the ones who are lit from within. Like Robin Williams in the movie Dead Poets Society, there’s an infectious spirit that makes me feel like I’m not only learning but also catching a spark.

I mention this because of a recent podcast conversation Vicki Atkinson and I had with blogger, parent, FASD advocate and amazing human, Ab from the My Life with T blog. Ab is definitely lit from within.

Ab tells us of the moment both his advocacy and blogging started. When a program supporting kids like his young son was canceled, it lit both fires.

The writing practice is part of Ab’s self-care. It helps him process the events that need to be noted, held onto, learned from, and cherished. It’s a great tool in his wonderful resource kit for parenting well.

And then his writing helps to raise awareness about people living with FASD. Ab shares the definition of Fetal Alcohol Spectrum Disorder and we discuss how building awareness and understanding is so important.

Ab makes such great connections about different blogs and the way our writing unites us.

It was so much fun to be able to talk with Ab. It feels as if we are old friends after interacting nearly every day for 4 years on one blog or another. He is so passionate, funny and articulate and we could have talked for hours. Vicki and I are so lucky to have the great fun of being able to talk with people who are dear blog friends.

This in an incredible conversation about how moments of disappointment and frustration can blossom into something fruitful when you follow the threads as Ab did.

I’m confident you’ll love the scenic and beautiful places we explore as we share the power of storytelling.

We know you’ll love it!

Search (and subscribe!) for Sharing the Heart of the Matter on Apple, Amazon, Spotify or Pocket Casts OR Listen to it from your computer on Anchor: Episode 85: Writing and Advocacy with Ab

AND subscribe to our YouTube channel to see a video clip of each story: @SharingtheHeartoftheMatter.

Links for this Episode:

My Life with T blog by Ab

In Canada: What is FASD? – CanFASD

In the United States: FASD United

A great resource for caregivers trying to understand and support a loved one with FASD:

Trying Differently Rather Than Harder: Fetal Alcohol Spectrum Disorders – Third Edition: 9780972953207: Books – Amazon.ca

A book by recognized FASD educator Nate Sheets:

Essential FASD Supports: Understanding and Supporting People with Fetal Alcohol Spectrum Disorders: Sheets, Nate: 9781977245083: Books – Amazon.ca

From the Hosts:

Vicki’s recently released book: Surviving Sue

Wynne’s book about her beloved father: Finding My Father’s Faith